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Rose Zhou/MEDILL

The beer that could make a rare disease famous

by Rose Zhou
June 06, 2014


Rose Zhou/MEDILL

Cohen Garcia needs oxygen and a feeding tube to survive, because of a rare genetic disorder.

Ryan Garcia has made a name for himself by performing acts of kindness. His latest act is to name a beer after his six-month-old son Cohen. Garcia hopes the micro-brew -- called 'Cohen's State of Kind' -- will bring major attention to a rare disease. Cohen has a genetic disorder called 22q11.2 deletion syndrome, which makes him unable to breathe or swallow.